Earlier this month I introduced myself to Pat Killingsworth over email. One of the things I mentioned during our initial discussion is that, "we really need some sort of 'clearinghouse' to disseminate all this information ie. how patient A responds to medication B and procedure C etc. In this age of information you'd think it would already exist..."
Today Pat wrote an article and posted it to one of his sites, HelpWithCancer.org. Here's an excerpt from the CancerCommons.org home page he writes about...
...an estimated 70% of all cancer drugs are used off-label in cocktails based on each individual physician’s experience, as if the nation's 30,000 oncologists are engaged in a gigantic uncontrolled and unobserved experiment, involving hundreds of thousands of patients suffering from an undetermined number of diseases. What if these informal experiments could be coordinated into a giant adaptive search for better, individualized treatments?
What if? Sounds like some wonderful ideas to me!
CancerCommons.org founder Marty Tenenbaum talks to Chris Jansing on MSNBC